Stories Serious Illnesses Surviving on a cycle
 
Surviving on a cycle  E-mail
Serious Illnesses
Written by Jack, Shelby   

Cancer has been a big part of our lives. My father and father-in-law passed away from cancer. A very close friend – I’d call her my sister in everything but blood –passed away from cancer. My wife Chris has a rare pre-cancerous disease called Paget’s disease for which there is no cure. She has been under constant doctor’s care for the last 9 years.  

So, when I was diagnosed with Stage IV prostrate cancer that had spread to my bladder, I knew what I was up against. I had been retired four years after working as a music teacher for 30 years and was busy with my new career as a student travel planner.  I am forever grateful to my doctor who let us know he was not going to give up on me. The doctor’s words to us were, “You are too young to have prostate cancer. I’m not going to be happy giving you five years; I’d rather give you 30 years.”

While those words were hopeful, the road certainly was not easy. One week after surgery, I started a hormone-based chemo regimen which lasted three years. The drug, Lupron, eliminates the body’s ability to produce testosterone, which feeds the cancer. Later I started two months of daily radiation treatments. 

I told my doctors I felt like the poster boy for side effects, which included everything from incontinence and impotence to extreme fatigue and depression. Over the years, I have had numerous surgeries to address complications associated with chemo and radiation treatments, the latest to remove 20% of my colon which was damaged by the radiation.

  My family, especially my wife, helped me through these rough times. Chris was and continues to be my rock. Even though she has her own illness to contend with, she has never given me any reason to doubt myself.  

I also gained inspiration from other cancer survivors. They were my heroes. There was a young man in my community named Mason whose mother I taught with at school. He was diagnosed with a very rare form of cancer at age 9 and fought it valiantly for three years before he died. He never complained and did what he could do. On days when I felt absolutely horrible, I thought, “If Mason can get through the day; I can get through the day.”

 Lance Armstrong was another one of my heroes. I had been a cyclist when I was in my 20s, so his story struck a chord with me. I thought if he could get through his challenges, I could too. 

  After I had been in treatment for two years, the doctor said to me, “You’re well enough now; it’s time to get back into some kind of physical routine. What do you like to do?”  I told him I used to like to ride before I had kids and got busy with my career. He said, “Go get yourself a bicycle and start riding again. Just do it recreationally. Ride around the block a couple of times a day.”  

Well I bought a bike, but I wasn’t satisfied with just riding around the block. Reading Lance Armstrong’s book inspired me to get back into distance cycling and support his foundation. 

 I participated in my first LiveStrong Challenge, the Lance Armstrong Foundation’s signature fund-raising event, while finishing my chemo treatments. It was held in the foothills of the Pocono Mountains near Philadelphia. I rode 46 miles, which to me, seemed like 146.  I had to walk many of the hills because I just didn’t have the strength to ride them.    

Last year I rode it again with my son and it was so much easier. This year my fund raising efforts qualified me for the Ride for The Roses, sponsored by LiveStrong.  It is an event that honors the top fund raisers in the country.  Over 17,000 participants took part this year in the LiveStrong Challenges.  Of all of those, only 84 qualified for the Ride For The Roses.  I’m very proud of what Chris and I have done and so thankful for my health and all the support from my family, friends, and community.   I also host a LiveStrong rally here in my hometown – we’re currently making plans to hold our fourth annual Shelby LiveStrong Rally. These things have become my passion.  

No pun intended, but my bicycle is the vehicle I use to get my point across to raise awareness about cancer. I have a program that I bring to schools, speaking to students from third grade and up. For the younger kids, I bring my bicycle. I come dressed in my riding gear because that grabs their interest immediately. I tell them, “Yes I’m a cancer survivor, but look what I’m still doing.” Even third- graders know someone who has had cancer. I let them know it’s OK to talk about it and to encourage Mom and Dad to get checkups. For older students, I’ll tell girls that they are not too young to learn about self breast exams and encourage boys to check themselves for testicular cancer. Their future is quite literally, in their own hands.  

 I also have a presentation I give at churches that focuses on my spiritual journey. I’m a Christian; I’ve always been a believer. I share how my faith helped me gain strength, courage and a more positive attitude. 

My work gives me hope. Even 10 years ago, a cancer diagnosis like mine was a death sentence. It isn’t that way anymore because there are so many people being diagnosed earlier. And treatments are so much more successful.  That’s happening because of awareness. We’re finding cancer in people a lot earlier than we used to and at a lot earlier stage so it’s treatable, so we have a lot more survivors. 

My other passion is encouraging and helping other cancer survivors. The most satisfying thing is to know you’ve made a difference in someone’s life because of your experience. When I was ill, I really didn’t have anyone to talk to because everyone I knew who had cancer was gone. Now if I know of someone who’s ill in my little community, I make it my mission to make contact with them and do what I can to help them. I try to reassure them and provide some resources they can use. 

When people say that cancer has changed them for the better, now I understand what they mean. It reprioritizes and reorganizes your life immediately and overnight. Things that in the past were the most important to you suddenly aren’t important to you at all. The things that become most important are your faith, family and friends. 

My wife and I never put things off anymore. No one can guarantee when I go to the doctor next month that everything is going to be fine. There’s no reason to believe it’s not going to be, but there’s no guarantee. Every day we have together is a gift 

When I’m on my bike, I don’t have to think about cancer. I don’t have to think about getting through the next day. It’s liberating. We live in a beautiful area with a lot of Amish farms. I like to ride out in the country and be in that environment. I feel free, uninhibited. I do a lot of thinking about myself and family – not my problems. It’s a release for me. 

I  believe that God knew that my love of cycling when I was in my 20s was what I was going to need later in my life. He gave me that love because He knew I would be able to use it to help others and make a difference.  I think there’s a plan, and eventually He lets you know what that is.  I am a blessed man and there isn’t a day goes by that I don’t say a prayer and give thanks for another day to be here, with my wife and family, making a difference in the lives of others. 

God Bless You and LiveStrong,  Jack